About

Our vision is a world free of multiple sclerosis and that no special person should suffer or lose their life to this disease.

The mission of the Trish Multiple Sclerosis Research Foundation is to find a cure or preventive strategy for multiple sclerosis.

Over $8.5 Million

Raised for MS Research

70+

Research Grants funded

26 Years of volunteers

working for a cure.

The Foundation

The Trish Multiple Sclerosis Research Foundation (ABN 22 089 078 464) was inspired by Trish Langsford who, having lost her battle with multiple sclerosis, passed away at the age of 30.

The Foundation was established with the specific goal of finding a cure or preventive strategy for multiple sclerosis. Trish’s parents made a promise to her that they would not give up in the pursuit of the Trish Foundation’s goal. Please see below for more about Trish.

In contrast to a number of other charities, the Foundation is staffed by a team of dedicated, unpaid volunteers and every dollar raised is placed into research.  The Directors of the Foundation have covered the administrative expenses since inception.

The Foundation is working very closely with MS scientists around Australia towards our common goal.

What is MS?

Multiple sclerosis is a chronic degenerative disease of the Central Nervous System and is the most common neurological disease that affects young adults.

In MS sufferers the myelin, which encases the nerve fibres and assists nerve function, becomes inflamed and damaged causing plaques or lesions of inflammation and the myelin is lost from many areas of the Central Nervous System.

Multiple sclerosis is increasing in prevalence at an alarming 7% per annum and at least 5% of all patients with multiple sclerosis experience the clinical onset of their disease prior to age 18 years.

The disease is unpredictable. From diagnosis onwards, people with MS have to live with uncertainty.  There are now effective medications for relapsing/remitting MS which are enabling people living with MS to live relatively normally.  Prevention and a proven treatment for Progressive MS are urgent, unmet needs and are the total focus of the Trish Foundation’s honorary Board and honorary Scientific Research Committee.

Brave Enough to Dream

Singer/songwriter Allan Caswell — winner of six Golden Guitars at the Tamworth Country Music Festival — and his wife Marian wrote a Song for Trish, “Brave Enough to Dream”, as a special and moving tribute to Trish.

Click play below to listen.

Our Patron – Dr Brendan Nelson AO

Dr Brendan Nelson AO, Patron of the Trish MS Research Foundation, speaking at a Foundation ball

The Trish Foundation is honoured and privileged that Dr Brendan Nelson AO, former Director of the Australian War Memorial, is Patron of the Foundation. We wish to record our sincere gratitude to Brendan for his extraordinary support of the Trish Foundation since inception.

“Trish Foundation has dispensed the most powerful and fragile of human emotions – hope.”

“… this remarkable story is one of courage sustained by a remarkable love. Love of parents, love of her God and the love of childhood friends.”

“… Trish accepted her debilitating disease with dignified grace. Her embarrassed humility in accepting sporting trophies translated into the way she faced adversity. Not once did she complain through her long illness.”

“In doing so she inspired those around her to be stronger people.”

“Critics of faith – of belief in someone or something greater than oneself should reflect on what this woman said on the eve of her admission to a nursing home. She said, ‘With everything God has done for us, for me, who am I to complain that I have this disease?’”

“We mortals can do something for the memory of this inspiring woman.”

— Dr Brendan Nelson AO, Patron of Trish Multiple Sclerosis Research Foundation

Hon Barry O’Farrell AO and his wife Rosemary have significantly supported the Trish MS Research Foundation since inception.  When Barry was appointed High Commissioner to India he was required to resign as Joint Patron of the Foundation, along with his other roles in Australia.  The Foundation’s heartfelt gratitude is extended to Barry and Rosemary for their very valued contribution to the Trish Foundation.

Board of Directors

Carol Langsford OAM

Chair

Carol Langsford was employed in the family jewellery business and later became a Professional Tennis Coach, coaching winning Tildesley Shield teams at Ravenswood School for Girls and Roseville College.

She served on Tennis Australia’s Player Development Board and as a National Selector. She was a Board member of Tennis New South Wales for twelve years and was a member of the Participation (Chair), Player Development, Tournament & Sanctioning, Strategic Planning, Women’s Selection, Executive, Coaches Examination, Social, Women’s Advisory Committee, Membership, Competition & Events, Referee Appointment, Player Development & Community Tennis and Marketing & Sponsorship Committees. She was Tennis NSW delegate to the NSW Olympic Council and was a member of the Ministerial Women in Sport Advisory Council in NSW. She brings many skills to the Board including Corporate Governance, event management, marketing and communication.

She holds a Diploma of Freelance Journalism with the Australian College of Journalism and is Chair of the Trish Foundation.

The Foundation is privileged and grateful for the honorary professional contribution of our eminent Scientific Research Committee who give immense amounts of their valuable time and their significant expertise pro bono to the Trish MS Research Foundation.

Wendy Dodd

Wendy has been employed in the jewellery trade since 1965 involved in all aspects of the business including staff education and management, only taking time out to have 3 daughters and to accompany David when he was overseas in 1972 and 1980.

She still works part time for a Gold Dealer and brings a variety of skills to the Board.

She has been a Board member since inception.

Niall King OAM

Niall King owned and managed a plumbing company involved in construction, design, commercial and industrial installation of Plumbing, Drainage, Gasfitting and Fire Services from 1973 until 2002 when he retired to take on the role of full time carer for his wife Carole who had profound disability due to advanced Multiple Sclerosis. Sadly, Carole passed away on 3rd June 2018 following her brave, dignified battle with MS.

Niall has until recently been a member of the Rotary Club of Strathfield, holding several board positions over 25 years of service and has also worked as a volunteer at MS Society events and at the Studdy Centre, Lidcombe for over 20 years.

Niall has been a supporter of the Trish Foundation since 2002 and organised Golf Day fundraisers through the Strathfield Rotary Club from 2002 to 2010, raising approximately $250,000. A further two events were held in 2011 and 2012 adding an additional $143,000. Niall conducted two additional Golf Days in 2019 and 2020, raising additional valuable funds for the Foundation’s research.

Niall has been honoured with Rotary Awards: Paul Harris Fellow 2003, Paul Harris Fellow Sapphire Pin 2007, Service above Self 2009

Niall has also been honoured with other Awards: OAM 2011, Strathfield Citizen of the Year 2011, Sydney Inner West Volunteer of the Year 2011, NSW Carers Award 2013.

John Roberts

Having known Trish since they were both teenagers, and having witnessed firsthand the suffering Trish so bravely endured, John has been a supporter of the foundation since inception. When the foundation’s goal to find a cure or preventative strategy for MS is realised, John knows too well how life altering this will be for all concerned. Accordingly, John was honoured to be invited to join the Trish MS Board in 2017.

John’s early career was with Australian Airlines, and subsequently with QANTAS when the two airlines merged. This career path saw John progress through various roles including retail sales, telephone sales, system software testing, system software development, and business process analysis and improvement. John was selected to participate in QANTAS’ Lean Six Sigma training programme, culminating in GE Aircraft Engines’ Customer Six Sigma Black Belt Training in 2006. John was a divisional Annual Excel Award Winner for 2007 – nominated for ongoing demonstration of exceptional leadership.

In 2011 John was recruited into UGL Limited, when a previous manager from his QANTAS days invited him to apply for a position, once again reporting to her, within the Bids and Tenders Team for the Freight Rail line of business. This position largely involved designing and developing systems and processes to produce quality bid and tender submissions. After nearly seven years of service at UGL, John was recruited by Downer to join their Major Projects team, and is presently tasked with improving their bidding systems, as a Bid Systems Engineer.

Jeremy Wright AM BE(Hon), MBA, GAIDC

Jeremy’s working career focused on marketing with international, interstate and local organisations involved in advertising, the performing arts, the energy sector and telecommunications.

He began his involvement in not-for-profit activities in 1985 as a board member of Sydney Dance Co. In 1989, Jeremy and his wife Marilyn, launched Red Nose Day in NSW and followed up by directing a successful prevention campaign for Sudden Infant Death Syndrome. He also assisted in launching Jeans for Genes Day and has served on the Boards of the Starlight Foundation and Telstra ChildFlight.

From 2004, Jeremy served as the founding Chief  Executive of MS Research Australia (MSRA), facilitating over A$25mill as part of an international research effort, aiming to solve multiple sclerosis.

Having retired from MSRA in 2013, Jeremy has taken on several project management roles, in medical research and Indigenous affairs. He is also on the Board of the Sydney Children’s Hospital Network and since 2016 has been Chairman of Synergy & Taikoz Ltd.

Joshua True

Josh joined the Trish MS Research Foundation Board in 2018, following seven years of dedicated service on the Trish MS Ball Committee.

Josh has worked in secondary education since 1999, across both Independent and Catholic schools in New South Wales. Throughout his career, he has held a range of leadership positions, contributing to school executive teams and advisory groups. His areas of expertise include the strategic integration of technology in education and the development of Vocational Education and Training (VET) programs in schools.

Josh’s passion for education and community service continues to drive his contributions to the Trish MS Research Foundation, supporting its mission to find a cure for Multiple Sclerosis.

Sharon Russell

Sharon initially qualified as a physiotherapist and then went on to study law. She was admitted to practice law in 2005 and since then has worked in the area of Health Law.

She is currently working as a Legal Team Manager, providing medico legal advice to medical practitioners and medical practices. She has developed extensive experience acting on behalf of medical practitioners in civil disputes, disciplinary matters, complex regulatory investigations, coronial inquiries and other health law matters.

Sharon has been the Trish MS Research Foundation’s Company Secretary since its inception in 1999 and is passionate in finding a cure for MS.

Scientific Research Committee

Professor John Pollard AO

Chair

Professor John Pollard AO MB BS BSc(Med) PhD FRACP FRCP(Lond) (Chair) was Bushell Professor of Neurology, University of Sydney until 2008 and remains a member of the Neuroinflammation Group at the Brain and Mind Centre University of Sydney. He was a member of the steering committee of the World Federation of Neurology Neuromuscular Group and past Board member of the International Peripheral Nerve Society.  Professor Pollard is the Chairman of the Foundation’s Scientific Research Committee.

Michael Barnett MBBS FRACP PhD

Michael Barnett MBBS FRACP PhD  is the McLeod Professor of Neurology at the Brain and Mind Centre (BMC), University of Sydney; consultant neurologist and Director of the MS Service at Royal Prince Alfred Hospital (RPAH) Sydney; and Director of the MS Clinical Trials Unit at the BMC. He trained in neurology at RPAH and received further subspecialty training in Neuroinflammation and Neuro-ophthalmology at the National Hospital for Neurology and Neurosurgery, and Moorfields Eye Hospital, in London. He subsequently completed a PhD in MS pathophysiology at the University of Sydney; and has particular research interests in MS neuropathology and neuroimaging. He co-founded two successful med-tech companies, including the Sydney Neuroimaging Analysis Centre (SNAC), the first regulatory-compliant neuroimaging analysis / central MRI reading for MS clinical trials in the Southern hemisphere. He is a leader in the Brain and Mind Centre’s Computational Neuroscience Team, which is spearheading the development and application of AI-derived algorithms and imaging biomarkers to further understanding of the mechanisms of neurological disease, improve diagnostic specificity and enhance treatment paradigms. He is also co-Director of the MS Australia Brain Bank and former Chairman of the PACTRIMS Scientific Program Committee.

Dr Jennifer Massey MBBS (Hons) FRACP PhD

Dr Jennifer Massey MBBS (Hons) FRACP PhD is a Neurologist based at St Vincent’s, Sydney. She completed her undergraduate training at UWA graduating with honours and worked in Western Australia prior to beginning Neurology Advanced Training in NSW. She completed neurology training in 2017 is currently working as a VMO at St Vincent’s Hospital. Her PhD looks at the clinical, radiological and immunological outcomes of patients undergoing AHSCT for MS. She continues to be heavily involved in this translational research project and is the recent recipient of an MSRA postdoctorate fellowship.

Professor Graeme Stewart AM FRSN

Prof Stewart is a clinician scientist, trained both as a Physician and Pathologist. He was the Director of the Department of Clinical Immunology from 1980 to 2020 at Westmead Hospital, the largest teaching hospital of the University of Sydney where he holds the title of Clinical Professor of Medicine. In 2020 he also stepped down as Director of the Centre for Immunology & Allergy Research in the Westmead Institute for Medical Research (WIMR) with an international reputation in research in the field of human immunogenetics, particularly in the discovery of genetic susceptibility to multiple sclerosis.

Having retired from clinical work in 2020, he continues, in 2021, to contribute to research in the WIMR and to teaching at the University of Sydney.

Professor Stewart’s research interest in the autoimmune nature of multiple sclerosis spans more than 40 years with a principal focus on genetic factors and the insights they provide into the immunopathogenesis of the disease. He initiated the Australian & New Zealand MS Genetics Consortium (ANZgene) and is a founding member of the 6 person Governance Group for the International MS Genetics Consortium (IMSGC), through which a sizeable proportion of the MS genes have now been discovered (Nature 2011, Nature Genetics 2013, Cell 2018, Science 2019).

Prof Stewart received almost continuous research funding from the Australian government (NH&MRC, Australian Research Council) for 40 years.  He has published more than 250 papers in peer reviewed journals with more than 17,000 citations and an h-index of 58. He has supervised more than 30 graduate students, mostly for PhD. His research group is one of the four founding groups (in 1996) of the Westmead Millennium Institute, now the Westmead Institute for Medical Research.

Prof Stewart has occupied senior positions in science governance in Australia including Chair of the Fellowships’ Committee and membership of the Research Council of the National Health and Medical Research Council (NH&MRC) and Chair of the Commonwealth AIDS Research Grants Council. He was a founding board member of Multiple Sclerosis Research Australia in 2004, a position he held to 2020.

In 2005 he became a Member of the Order of Australia for service to the development of health policy and medical education about HIV and AIDS, to medicine in the field of Immunology, and to research on the genetics of multiple sclerosis. In 2014 he was awarded Fellowship of the Royal Society of NSW.

Professor Helmut Butzkueven

Professor Helmut Butzkueven (MBBS 1992, PhD 2002), is an academic neurologist specializing in management of Multiple Sclerosis (MS) and real-world MS outcomes research. He is the van Cleef Roet professor of Neuroscience Research at the Central Clinical School, Monash University and Director of Neurology at Alfred Health, Melbourne. Helmut Butzkueven is the Managing Director of the MSBase Foundation (www.msbase.org), a global online MS cohort study which commenced in 2004, with more than 74,000 patients enrolled from 130 centres to date. His overarching research theme and clinical interest is the use of registry data, clinical MRI data, cognitive testing, genomics and patient self-monitoring devices and applications to evaluate treatment strategies and trial methodology to optimize benefit, safety and discovery of MS therapies.

Associate Professor Stephen Reddel MB BS PhD FRACP

Associate Professor Stephen Reddel MB BS PhD FRACP
Stephen Reddel is a staff specialist neurologist at Concord Repatriation & General Hospital Sydney, and consultant neurologist at the Brain & Mind Research Institute, University of Sydney. He trained in neurology at Royal Prince Alfred Hospital, Sydney, and at the Radcliffe Infirmary, Oxford, and has a PhD in the immunology of the Anti-Phospholipid Syndrome. He heads the neuroimmunology clinic at Concord Hospital, which specialises in the safe treatment of neurological conditions requiring immunotherapy, including multiple sclerosis, myasthenia gravis, chronic inflammatory demyelinating polyneuropathy and a host of rarer diseases. Dr Reddel’s academic appointment is Associate Professor, Sydney University where he has been involved in the neurology course development, ensuring standards of institutional sartorial elegance, online lectures and teaching of medical students, post graduate clinical training and post graduate research student supervision.

We also gratefully acknowledge recently retired member Dr Emily Mathey, and former members the late Emeritus Professor James McLeod and Dr John Walsh.

In memory of

Trish Langsford

Imagine a world where one day you are an elite athlete, full of life and vitality, a young woman living out your dreams.

Now imagine that world being stripped away and replaced by a different world, a world that consisted of lying in a nursing home bed, completely paralysed, unable to speak or communicate with your loved ones.

That was Trish Langsford’s world.

The Foundation is named after Trish Langsford, who was struck down in the prime of her life by multiple sclerosis. As well as being an A1 tennis player and first grade hockey player, Trish represented New South Wales in the Open Women’s Cricket Team and captained the Australian Youth Cricket Team against New Zealand. She was also a member of the Australian Squad and was described by cricket writer Amanda Weaver as one of the most gifted players in Australia.

Trish graduated from university with a degree in Human Movement following which she was appointed Development Officer for Women’s Cricket NSW. She enjoyed her job and was very sad when, at the age of 23, she finally had to relinquish the position because of her multiple sclerosis.

At age 30, Trish sadly passed away in 2002 having spent four and a half years in a nursing home with end-stage multiple sclerosis. She was completely paralysed, artificially fed and morphine was administered four hourly during that entire time. She understood everything that was said but unfortunately could not communicate. It is hard to imagine what she could have been thinking.

Prior to Trish passing away, Professor John Pollard a member of the Foundation’s Scientific Research Committee said, “Unfortunately Trish is in end-stage multiple sclerosis; she had the chronic progressive form of the disease and very sadly, no treatment that is found by our research or that of others is going to help Trish at this stage. What is important is that we develop treatments for this disease to prevent patients reaching this end-stage disease.”

Trish’s death wasn’t in vain. Her family and friends watched her suffer and lose her grip on life and are determined to save others from the tragic consequences of this disease.

Trish the Cricketer

Not long ago Trish Langsford was described by cricket writer Amanda Weaver as one of the most gifted players in Australia.

That is, until she was struck down by multiple sclerosis.

From a very young age Trish set lofty goals for herself and worked very hard to achieve her ultimate goal, Australian representation. She relished playing her chosen sport and represented New South Wales from the age of fifteen. She was named Sydney Women’s Cricket Association Player of the Year during the 1990/1991 season.

Interviewed on 2UE, she was asked about her maiden century. Trish replied:

“This season I got my first century, 109 not out versus Campbelltown and in the National Championships I got 6 for 38 versus Queensland. I was very pleased with my season this year. It was the best I’ve ever had.”

Following that Trish made her debut in the New South Wales Open Team at the 1991 Australian Championships held in Orange. She won the aggregate and average bowling awards and also made a handy contribution with the bat. Trish was then named Player of the Series, quite an achievement on debut, and especially for one so young.

Again interviewed on 2UE she was asked, The National Squad was chosen to play New Zealand. No Tricia Langsford, Player of the Series but didn’t make the Squad, bit disappointing? Trish replied:

“Yeah I was a little bit disappointed, but it’s understandable. I’m still only 20, only young and there’s a youth team to go away to India which hopefully I might get into.”

The following year in Adelaide Trish top scored with 59 runs and was also New South Wales’ best bowler in the final against South Australia.

In 1994, just before being struck down by multiple sclerosis, Trish captained the Australian Youth Team against New Zealand in Toowoomba. The team won the one day series and the rain affected Test finished in a draw.

Trish completed a degree in Human Movement and became Development Officer for Women’s Cricket NSW, continuing her involvement in the sport she loved.

Later that same year, Trish became afflicted with severe multiple sclerosis. Within a few short months, the job she loved was gone, the brightest of sporting careers cut down.

After Trish was admitted to the nursing home, Women’s Cricket NSW bestowed the honour on her of presenting her with the prestigious True Blue Award. Australian captain Belinda Clark presented Trish with the award, a copy of which is shown at right: Presentation of True Blue Award – Trish, her father Roy and Belinda Clark

NEW SOUTH WALES WOMEN’S CRICKET ASSOCIATION INC.
TRUE BLUE AWARD

TRISH LANGSFORD

  • Represented NSW U/18’s 1986 to 1987
  • Represented NSW U/21’s 1988 to 1990
  • Named Vice Captain of NSW U/21’s from 1989 and 1990
  • Represented NSW in the open team from 1991 to 1993
  • Named “Player of the Series” on debut season for the NSW Open team at the 1991 Australian Championships
  • Named Sydney Women’s Cricket Association “Player of the Year” during 1990/91
  • Selected in the Australian Development Squad from 1990 – 1993
  • Named Captain of the Australian U/23 team for Australia V New Zealand Series (Dive-Lamason Youth Challenge Cup) in 1993/94
  • Appointed as the NSWWCA part-time Development Officer in 1993
  • Resigned from the Development Officer’s position and withdrew from the NSW Open team due to illness in 1994

Trish will always be remembered for her sportsmanship, dedication and commitment to the sport and her willingness to encourage and assist young players

  • True Blue Award Criteria (Adopted – March 1999). Awarded to a past player who has:
  • Represented NSW at the Senior level:
  • While representing NSWWCA:
    • Played with dedication, excellence and courage;
    • Acted selflessly and in the best interest of the team at all times;
    • Willingly carried out Team leadership requests and directives;
    • Conscientiously met playing, practice and training requirements;
    • Demonstrated self-discipline and honest, ethical behaviour at all times;
  • Off the field:
    • In a voluntary capacity contributed in a substantial way to the development of NSWWCA and/or an Affiliated Association or Women’s Cricket Australia, for example, coaching, administration, etc.
  • And:
    • Not brought the Team, NSWWCA, its affiliates or the game into disrepute, nor have been found guilty under any of the sport’s disciplinary procedures, including Codes of Conduct or Drug Policy